I just wanted to stop in and give an update. Not something I usually do but I just want to for this.
I am struggling with some pretty severe issues. I’m not completely sure what’s going on but when I eat many things now, my legs and ankles swell up. And I know that it’s not limited to only those parts of me.
Today, I ate two tiny oranges and not only did my legs and ankles swell up, but so did my brain. I could feel it. I could feel it in the part of my skull that makes up my forehead the most. This has happened before but not like today.
I am still trying to figure out which foods are okay but I can tell you for sure that oranges are an absolute no way.
When I’m reacting really badly I also get this prickly itchy feeling in random places on my body.
I’ve gone through something similar before but it was always mild and it would just go away. At those times I did some reading on histamine intolerance so I believe that to be an issue…but only part of the issue.
The other thing I just happened to stumble on and can’t remember exactly how or what the first thing was, is glutamate…to much of it in the brain. It causes different symptoms for different people. I’m getting swelling and histamine intolerance.
It wasn’t too bad until the other day when I decided to test some bone broth that I had made in the Instant Pot. Big fucking mistake.
The biggest frustration is that I’m reacting to things now that I wasn’t before.
Like I was eating oatmeal with raw milk, maple syrup and cinnamon and I was fine. But the last time I ate it, I swelled up. Of course with a variety of ingredients I’m not sure what it is, but I can guess since I’ve been reading. It’s probably the milk for sure. But it could also be the oats…but it might not be. Some people with this issue can eat oats, but it’s on the list of things high in a glutamate…or triggers a glutamate response.
I was able to eat my own homemade mayo before, but the last time I ate it my legs swelled up. That could be the small amount of apple cider vinegar in it, or the little bit of mustard or the onion powder I like to add to give it some flavor.
I also made the mistake of seasoning up some chicken thighs with garlic powder, onion powder, dried basil and oregano. I reacted to that too. But it could also be the fact that I left the bones in. The bones is what’s used for broths and creates glutamate.
For the seasonings, the glutamate comes from the drying process, not necessarily from the plants themselves.
Today I had a cheeseburger and a half, cooked in butter. I was fine. Whew right? Well I had the same this afternoon minus the cheese and my ankles blew up…just a little, but still.
However, I THINK (but can’t be sure) that my ankles actually blew up in reaction to a supplement I took. It was a capsule of hawthorn berry and rhodiola. I had already taken a plain hawthorn berry capsule after breakfast and I did okay on that. But just the timing of when my legs swelled, made it difficult to pin-point the herb for sure.
My head hurts right now. I am surprised really at how clearly I’m thinking, which is why I decided to do this right now.
Oh and something else the glutamate imbalance causes is sound sensitivity. Even a plastic fork being dropped on the counter top in the kitchen, while I’m in my bedroom feels like it severs a nerve.
So did you know that it’s apparently common for this to happen to adult children who were abused as children?
I’m sure my indecisiveness of diets didn’t help. I’ve fought with myself for decades now trying to figure out what I should and shouldn’t eat. It was the diagnosis of interstitial cystitis that sent me all over creation on the internet.
I believe that a keto diet would be best. BUT I can’t just start eating the keto way without going gradually because I get hard and scary heart palpitations when I try.
I thought I’d try a carnivore diet too. Big old rock and hard place with that too. I actually felt better in my brain, even for the short time I did it. I thought more clearly, I was more relaxed, my road rage was close to gone, anxiety about tailgaters was definitely lowering. But my hair was falling out in the shower, I mean at least 20 strands at a pop. And the arrhythmia was scary af.
So I started eating some oatmeal and some white rice again. The hair loss slowed and the heart palps went away.
But both of those things are back. Not as bad but it doesn’t matter. The fact that those things are present means something is wrong. And now the swelling. I’m scared and frustrated.
For dinner I had some white rice and napa cabbage cooked in butter. I was worried because I had cooked the rice with dulse. Seaweed is on the list as a trigger. And the cabbage, I had no idea. And so far rice has been fine but if it wasn’t tonight I wouldn’t know it because of the other ingredients.And then the butter…I haven’t seen it on any list, but ya never know.
I seem to be okay from the foods I ate for dinner, but I’m hungry again since I didn’t have much rice left. And I didn’t want to overdo the cabbage in case it was a problem. Bad things happen when a brain swells, I didn’t want to instigate that and I didn’t know if I was or not.
There’s still swelling in my ankles and legs but that seems to be left from the oranges and since it’s been exacerbated since this afternoon, it’s still hanging around. My ankles are not getting bigger though from what I can see.
Okay so that’s about it for now. I’ve only been reading about this for a few? maybe more like a couple days. So I don’t know that much, except that it can cause quite a few different so called ‘mental’ illnesses.
It’s stress that is the underlying cause of all of this. Emotional stress, psychological stress, physical stress. And with all the trauma my tolerance to stress is so low. The last decade alone was enough to put my brain and body through hell.
Of course when it rains it pours. (Huh! Seems like a theme doesn’t it?)
There are other things going on too besides this so it feels like I’m caught in an undertow. And now I’m afraid of food.
The woman speaking here has a young daughter who was diagnosed with autism. Her daughter no longer meets the criteria for autism.